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Will
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  • Chicago, IL
  • United States
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Will's Discussions

Organizing the Information We Know into a Chart

Started this discussion. Last reply by Cordellia Amethyste Rose Oct 20, 2010. 12 Replies

Has something like this been done yet? If not I propose we create an online chart so that everyone who is stuggling with this illness can cross-reference whatever key ideas they have.  First we…Continue

Tags: Cross-reference, Data, Information, Chart

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Latest Activity

Will commented on Cordellia Amethyste Rose's blog post I'm back! Medical mystery!
"You are a very brave woman. I'm glad you are feeling better.  Stay strong.  Everyone here loves you."
Sep 8, 2013
Will commented on Rick's blog post N-acetyl Cystein It's Helping A Lot!
""It seems like i can only use once every week to experience any benefits." No, I thought that too. I take it on an empty stomach and I've increased the dosage. I went from 1200 mg to 1800 mg.  I take it an hour before each meal…"
Sep 8, 2013
Will commented on Rick's blog post N-acetyl Cystein It's Helping A Lot!
"This has been helping me too!  I noticed it working after just 3-4 days of taking it. Its not perfect, but its the first thing that actually worked, and I've tried a lot.  One thing I can say is try taking it on an EMPTY STOMACH.. it…"
Sep 7, 2013
Cordellia Amethyste Rose replied to Will's discussion Organizing the Information We Know into a Chart
"Hi there. Thanks for helping Cynthia. She's continuing this important study & doing a clinical trial. There's a separate documentary going on which seems kinda cool, but I don't know any more than what was in her email. I told her…"
Oct 20, 2010
phoenix62 replied to Will's discussion Organizing the Information We Know into a Chart
"I think I might have mentioned this before, but...well, here goes. Oh, and Cordellia? I contacted the person you told me about and did the survey. She (or one of her colleagues?) is doing some kind of trial in NYC? You know anything about this? -and…"
Oct 20, 2010
Will replied to Liza's discussion Do you think MD is an addiction, like alcohol or drugs? Do you have other addictions/an addictive personality?
"No it doesn't sound preachy... it makes complete sense... Dealing with MD is hard to escape for exactly the reasons you and cordellia mention. I kind wish there were groups for MD like there are for Alcoholics Anonymous... Being a part of this…"
Jun 22, 2010
Will replied to Stacey Ryan's discussion help...
"I'm just gonna shoot from the hip... for all of us there are times when we can work... no matter how short of a time period we know we can get there. So the question is how can each of us get there and stay there. Well, undoubtedly because of…"
Jun 20, 2010
Will replied to Liza's discussion Do you think MD is an addiction, like alcohol or drugs? Do you have other addictions/an addictive personality?
"yeah... I agree. Also I think its key to point out the difference between this kind of addictive quality and something like ocd. The reason I daydream is because it feels good. If I was daydreaming because I was afraid that not doing it would cause…"
Jun 20, 2010
Will has enter the Video Chat by ooVoo
Jun 2, 2010
Will has enter the Video Chat by ooVoo
Jun 2, 2010
Will has enter the Video Chat by ooVoo
Jun 2, 2010
Will commented on Cordellia Amethyste Rose's blog post Birthday un-invitation
"Codellia, you can consider me to be a friend! When is your birthday? Also it sounds like the sensory issues may be worse than the daydreaming. Which is worse, or for you do you consider them to be one and the same?"
May 25, 2010
Will replied to Cordellia Amethyste Rose's discussion What helps?
"Just to answer your question about "perfecting" and "repeating," which is a really really good one btw! I would definitely say yes to doing both. My daydreaming is almost always about the same thing... just different versions,…"
May 16, 2010
Will commented on Cordellia Amethyste Rose's blog post Connections to sleep disorders and/or depression
"Yeah, I think we chatted about this before... Posting for everyone here though.... it may very well be that daydreaming problems for some might be related to a form of narcolepsy... My doctor thought this at one point... I was given a sample of…"
May 2, 2010
Will left a comment for Cordellia Amethyste Rose
"interesting, let me know what you think about the part on wakefulness and narcolepsy... p.32"
May 2, 2010
Cordellia Amethyste Rose left a comment for Will
"Oh, I'm just reading an online book I found on it. It takes me a LONG time to learn anything new, so it's going to be a long, slow process. It's always fun to have a new shiny toy though. :) Here's the book I found:…"
May 2, 2010

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At 11:50am on May 2, 2010, Cordellia Amethyste Rose said…
Oh, I'm just reading an online book I found on it. It takes me a LONG time to learn anything new, so it's going to be a long, slow process. It's always fun to have a new shiny toy though. :) Here's the book I found: http://www.sfn.org/skins/main/pdf/brainfacts/2008/brain_facts.pdf
At 11:02pm on April 12, 2010, Cordellia Amethyste Rose said…
Welcome, Will! Thanks for joining!

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