Cordellia Amethyste Rose's Blog (93)

Christmas Socks

This story happened several years ago and involves a site member.  I'll let her identify herself if she chooses.  

 

A few days before Christmas, I decided to go shopping and bought several pairs of fun, colored socks.  Then, I went and sat in a local coffee house (which is no longer in business) and drank some coffee.  On my way home, I checked…

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Added by Cordellia Amethyste Rose on December 23, 2013 at 12:40pm — 1 Comment

A Cold Night in December in France (true story)

I don’t know what just made me think of this, but it’s a true story about a great event I got to witness many years go.

 

I lived in downtown Poitiers and was pretty bored and lonely.  I kept praying to do something with my life and have some positive impact on someone.  It was a relatively safe neighborhood, so I’d often go out walking around downtown in the middle of the night.  There were pedestrian streets across from a big square where people would gather for events.  I…

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Added by Cordellia Amethyste Rose on December 22, 2013 at 3:24pm — 2 Comments

Poor kitties!

Well, it's been a crazy day over here.  Grendel went in for his surgery early this morning.  Then, I got a call that Mia's UA results were back, and she has a UTI which requires expensive meds, which she hates.  Then, she had another problem and had to go to the vet and get another medication.  I picked up all 3 of her meds at the same time and gave them to her when we got home.  She's been sluggish all day and not too happy with me.  She hissed at me when I walked by her a few minutes ago.…

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Added by Cordellia Amethyste Rose on December 19, 2013 at 5:26pm — 4 Comments

A message from Jayne for those who filled out the study questionnaire a while back:

"Thank you for participating in our research study on Maladaptive Daydreaming.  We are in the midst of data analysis, and are hopeful that once the article is published, we will be able to bring some attention to this issue.  

At the moment, we still need more data to test whether the results are consistent over time.  For that reason, we are asking people who took part in the full study and provided us with an email address, to take the MD…

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Added by Cordellia Amethyste Rose on December 19, 2013 at 5:20pm — 2 Comments

Grendel's getting surgery!

As some of you know, my poor cat, Grendel, has needed surgery for an abscess on his tooth for months.  One person donated a generous amount of money, and I've been saving but still had a long way to go.  Then, a dear person who's been like a mom to me donated a bunch of money, so now I can get the surgery.  The doctor who'd given me the old estimate left, so I had to get a new one, and it's a little bit more expensive, and his problem has gotten a little worse, but it's not too bad.  I'll…

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Added by Cordellia Amethyste Rose on December 8, 2013 at 3:53pm — 3 Comments

AWESOME TED Talk about closets we all live in.

This video is completely AWESOME!  Everyone should see this.  It's not only about gays and lesbians.  I think everyone can relate.  Her 3 rules at the end are great to live by, especially if you're afraid to talk about your MD.  …

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Added by Cordellia Amethyste Rose on November 7, 2013 at 5:31pm — 1 Comment

I just finished the Eli Somer interview.

It went well!  I spent hours making notes in case I froze up, and I was very nervous, but I didn't end up needing them.  He's a very nice guy, and we just talked for about 30 mins.  I told him he could use my name, but it can be completely anonymous.  It felt good to know that my voice is being heard by people in the psychological community.  I want them to wake up and listen to us.  I want them to figure out ways to help us, and I said so.  

If anyone else wants to…

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Added by Cordellia Amethyste Rose on November 6, 2013 at 9:14am — 9 Comments

Warfarin diet

As some of you know, in early September, I went into acute liver failure, and they also discovered blood clots in my leg and lung.  I'm doing better, but it's really scary that I came extremely close to death.  I've learned that having had a pulmonary embolism once puts me a much greater risk of having another.  When I had it, I didn't recognize the symptoms and almost didn't go to the hospital.  I could have died.  Please learn the risks and be aware.  Many people get them after a long…

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Added by Cordellia Amethyste Rose on October 30, 2013 at 11:59am — 1 Comment

Alexandra and Max

I have some news that will probably anger many people.  It's certainly angered a few of you.  

As many of you have probably noticed, Alex constantly talked about wanting to die and hurting herself.  This is very serious to me.  I couldn't just sit by and not respond.  Many of us, including me, tried the gentle approach of sitting with her for hours and just talking to her.  That didn't help.  I eventually tried the tough love approach.  That only angered her.  I didn't know…

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Added by Cordellia Amethyste Rose on October 7, 2013 at 9:30pm — 15 Comments

How Daydreaming Can Make You Smarter

This is an interesting article that one of my facebook friends shared with me.  TBH, I didn't think any of my facebook friends read any of my posts about daydreaming, but apparently this one has.  Check it out.

http://www.huffingtonpost.com/2013/10/03/mind-wandering_n_4024852.html

Added by Cordellia Amethyste Rose on October 6, 2013 at 12:32pm — No Comments

Update on my health

Well, I saw my GI doc, and he finally provided some answers to what’s been going on.  He said my chart was an interesting read.  He thinks my liver failure was perhaps the result of a blood clot in the liver, which was perhaps the result of my surgery, or it could be a reaction to something they gave me in the hospital like the anesthesia.  He’s certain it’s nothing I did or took.  He’s also certain it’s a surgical complication.  The only part of that I question is how I might have gotten…

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Added by Cordellia Amethyste Rose on October 3, 2013 at 5:51pm — 2 Comments

If you want to donate.....

Here's just a quick reminder that if you want to donate money towards the site or towards my cat, Grendel's, surgery, you can send money via Paypal to ohsweetgoodnight@yahoo.com.  Please don't send emails there, as I don't use it for that.  Thanks to anyone who wants to help and everyone who has helped.  Please specify if it's for the site or Grendel's surgery, and I promise to use it for that.  

I'm glad to have you all, even if you can't donate.  

Added by Cordellia Amethyste Rose on September 26, 2013 at 6:39pm — 1 Comment

I'm back! Medical mystery!

I just got back into the hospital.  I could have died, yet they still don't know what happened.  I remember being in bed and being out of it.  At some point, I realized I'd been in bed for a day and texted that to Michael.  I was freaked out but too out of it to do anything.  I fed the kitties and went back to bed.

Then, I think it was the next day, I was sleeping and got a knock on my door.  It was my friend, Michael, and my apartment manager, Roz.  They looked like they'd…

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Added by Cordellia Amethyste Rose on September 6, 2013 at 7:39pm — 12 Comments

IMPORTANT NOTICE - I WILL BE GONE FOR A FEW DAYS!

THIS IS AN IMPORTANT NOTICE.  I WILL BE GONE FOR A FEW DAYS, STARTING ON THURSDAY OR FRIDAY OF THIS WEEK.  I don't know when I will be back, but I hopefully won't be gone for too long.

The reason is I will be getting surgery to fix my GERD.  My surgeon said I could be out the next day, but the last time I had surgery and was told that, I was in the hospital for 4 days.

PEOPLE WHO WANT TO JOIN THE SITE:

I will not be able to approve your membership until I…

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Added by Cordellia Amethyste Rose on August 27, 2013 at 8:43pm — 3 Comments

Update on Grendel's situation

This is another non-MD story, so forgive me.  It's just on my mind.

I just looked over my budget, and while things are tight, it looks like I'm still on track to be able to afford Grendel's surgery within a couple of months, if the vet will still let me do a payment plan, and I think they will.  I'm saving slowly.  They gave me 2 amounts, a minimum and a maximum.  I'm saving up for the minimum amount, and then I'm going to ask them to do the maximum on a payment plan.…

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Added by Cordellia Amethyste Rose on August 24, 2013 at 2:39pm — 4 Comments

GERD, Endoscopy, Manometry, and 24h PH test

This blog has nothing to do with Maladaptive Daydreaming, but I want it to be out there in case anyone Googles it, like I did, and wants to know about the procedures.  

As many of you on here know, I've been suffering from GERD for many years, and it has gotten to the point where it has become unbearable, and simple over-the-counter Prilosec wasn't working anymore.  I went to the doctor and was prescribed a double dose of Prilosec.  This helped somewhat, but I still had a lot…

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Added by Cordellia Amethyste Rose on August 23, 2013 at 5:51pm — 3 Comments

I went to a Highly Sensitive Person meet-up.

Ok, so for those who don't know I have SERIOUS social problems.  I pretty much can't get along with anyone, in person or on-line.  It's a huge part of the reason I'm on Disability.  I couldn't get along with anyone in an office environment or even online working from home.  Plus, I have a million sensitivities to sounds, light, profanity, touch, taste, etc which make it very hard to enjoy hanging out with people.  I took a big step today.  I joined a Highly Sensitive Person group on…

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Added by Cordellia Amethyste Rose on August 16, 2013 at 11:52am — 7 Comments

Message from Eli Somer on When We Can See Some Study Results

The following is an email from Eli Somer, explaining the time table as to when we'll see some study results.  

"Dear Cordellia,

Thanks for your informative note. I admire your courage and your dedication to promoting awareness to MD.

As for the study's time table. I anticipate that data collection will end in a month. We will than begin a series of data analyses the first of which will be completed in the fall. The write up of the first in a series of a few scientific…

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Added by Cordellia Amethyste Rose on August 14, 2013 at 9:37am — 3 Comments

Saw a dietitian

Well, as some of you know, I'm really overweight and trying to work on that before it starts causing me health problems, so I saw a dietitian.  I expected her to tell me to stop eating all that I'm eating and to only eat fruit and vegetables.  Well, I was wrong.  I told her I like almost nothing, and what little food I do like, I don't really love.  I said I wished I didn't have to eat at all.  What little food I like is unhealthy and making me fatter and fatter.  Well, surprisingly, she…

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Added by Cordellia Amethyste Rose on July 21, 2013 at 12:48pm — 7 Comments

sexual propositions

I got a very disturbing report that some men are propositioning women for sex on here.  This is completely inappropriate and will not be tolerated.  This is not a porn site, and I don't want anyone (male or female) to feel sexually harassed on here.  If this has happened to you, please message me immediately, and tell me who it was and what they said.  You can remain anonymous.  If you have done this, please stop IMMEDIATELY.  Anyone sexually propositioning another member risks suspension.…

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Added by Cordellia Amethyste Rose on May 26, 2013 at 11:46am — 1 Comment

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